My name is Akhona Ndudane, and I was born in the small town of Mount Frere in South Africa’s Eastern Cape. I reside in Leeds, England, UK, as a refugee. In 2016, I was diagnosed with HIV, a moment that forever changed my life.
The news of my diagnosis was devastating. I had always been a vibrant, dream-filled 38-year-old, but hearing the words, “You are HIV Positive,” shattered my world. Once bright and full of promise, my future suddenly felt uncertain, cloaked in fear and isolation.
The aftermath of my diagnosis was a tumultuous period. I grappled with denial, anger, and profound sadness. Telling my family was the most daunting task; their reactions were unpredictable. Yet, their unwavering support became my anchor. Unfortunately, not everyone was as understanding. I faced stigma and hurtful misconceptions, even from close friends. One of my best friends posted on Facebook, falsely accusing me of intentionally spreading HIV, which was incredibly painful and disturbing.
Living with HIV has not been easy. I struggle with depression, anxiety, PTSD, chronic insomnia, and grief. Adapting to life with HIV meant adhering to a strict medication regimen and enduring tough side effects. Despite these challenges, I found strength in routines and staying informed about my health. I continued to work, carefully navigating when to disclose my status. Dating was another significant hurdle, but honesty and open communication helped me manage it.
My experience ignited a passion for HIV advocacy. I joined a local support group and began speaking at community events, educating others about prevention, testing, and treatment. Breaking the stigma surrounding HIV became my mission, driven by the pain it caused me.
Living with HIV has taught me resilience and compassion. I have met incredible people who inspire me to keep fighting. To anyone newly diagnosed, I want to say that HIV is not the end. With proper treatment and support, you can lead a full and vibrant life.
My journey with HIV has been one of growth, self-discovery, self-love, and self-esteem. I urge everyone to get tested, educate themselves, and support those affected by HIV. Together, we can create a world free of stigma and discrimination, filled with hope.